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Princess Al-Jawhara Center of Excellence in Research of Hereditary Disorders
Document Details
Document Type
:
Article In Journal
Document Title
:
Attitudes towards mandatory national premarital screening for hereditary hemolytic disorders
فحوصات قبل الزواج الإلزامية للكشف عن أمراض الدم الوراثية
Subject
:
premarital screening
Document Language
:
English
Abstract
:
Background: A compulsory national premarital screening (PMS) program for hereditary hemoglobinopathies was established in the Kingdom of Saudi Arabia (KSA) in February 2004. Termination of pregnancy of affected fetuses is not widely acceptable. Many couples decide to get married regardless of the result. A trend towards coercive interference with this decision is emerging. Objectives: To examine the attitude of young educated individuals regarding the national PMS program and its implementation. Methods: Eight hundred university students (aged 18–29) filled in a self-administered structured questionnaire. Data were analyzed using the EPI Info Statistical Package version 6. A P-value <0.05 was considered significant. Results: Most students favor thePMSprogram but there were concerns regarding mandating the testing and interference with individual decision making. Significantly more women favored testing and coercive interference with the decision to marry. Conclusions: Further public education and wide spread genetic counseling prior to testing is essential for the success of the program. Screening singles on admission to university prior to any commitment may be preferable than screening immediately before the marriage certificate is issued.
ISSN
:
0168-8510
Journal Name
:
Health policy
Volume
:
97
Issue Number
:
1
Publishing Year
:
1431 AH
2010 AD
Article Type
:
Article
Added Date
:
Saturday, December 18, 2010
Researchers
Researcher Name (Arabic)
Researcher Name (English)
Researcher Type
Dr Grade
Email
جمانة يوسف الأعمى
Al-Aama, Jumana Yousuf
Investigator
Doctorate
jalama@kau.edu.sa
Files
File Name
Type
Description
28179.pdf
pdf
Attitudes Abstract
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